The Huntington’s Disease Society of America’s 2019 – 16th Annual National Youth Alliance [NYA] National Convention Scholarship

The Huntington’s Disease Society of America is pleased to announce it is now accepting applications for HDSA’s 2018 – 16th Annual National Youth Alliance (NYA) National Convention Scholarship.

The intent of this scholarship is to help active members of the NYA, attend the HDSA National Convention in Boston, MA and NYA Day on Thursday, June 27, 2019.

This fund was established to benefit all current members of the NYA and exists thanks to the support and generosity of families at the annual NYA Silent Auction and other events held at the annual HDSA National Convention, as well as fundraising efforts by NYA members throughout the year.

Scholarship Availability & Application
The scholarship is open to any current or alumni member of the NYA who did NOT receive a scholarship in 2018. You must be a registered member of HDSA’s NYA to apply. Membership information is available at


  • NYA alumni applications will receive full consideration from the Scholarship Committee. However scholarships will only be awarded if funding is available after current NYA member scholarships have been awarded.


All Scholarship recipients are expected to attend NYA Day on Thursday, June 27, 2019 as well as all pertinent workshops and NYA activities during the course of the National Convention. You will also be required to volunteer either for silent auction preparation or at the NYA table during the Convention.


What does the scholarship cover?

  • A Full Scholarship:

A full scholarship recipient will receive funding to cover round-trip airfare, hotel accommodations (you may be asked to share a room with other scholarship recipients) and Convention registration.


  • A Partial Scholarship:

A partial scholarship recipient will receive funding to cover one of the following:

-Round-trip airfare (or gas allowance for driving to the site of convention)

-Hotel Accommodations

-Convention Registration


Application Deadline:

Applications must be submitted by Wednesday, April 3, 2019. Any supporting attachements should be uploaded and attached to this application.

Notification of Winners

Applicants will be notified no later than May 8, 2019 as to the status of their application.


The application may be completed by any NYA or NYA alumni member who needs financial assistance to attend the HDSA 2019 National Convention in Boston, MA. The NYA Scholarship Committee will keep all information contained on this application in strict confidence. However the names of the scholarship winners will be announced on the HDSA website, as well as in other HDSA publications.

Contributions to this Fund
If you know someone who would like to contribute to the NYA Scholarship Fund at HDSA, please ask them to mail a check or money order, payable to the “HDSA” and in the memo please write ”NYA Scholarship Fund” to the above address. They may also make a contribution online by going to


Thank you for your continued support to the Huntington’s Disease Society of America and the HDSA National Youth Alliance!



Louise Vetter
Chief Executive Officer


Applicant Information


Parent or Guardian

If you are a minor (under18) please provide the following information about your parent or guardian:

Previous attendance at an HDSA National Convention: *
Are you actively part of a local HDSA Chapter/Affiliate and/or support group *
How many people/dependents are currently living in your home (including yourself): [a dependent is defined as those in Box 6 of IRS Income Tax form 1040, including the person filing.]

The total 2018 Gross Annual Income for my household was :.

Adjusted Gross Income is line 44 on IRS Income Tax form 1040. *


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Type of Financial Help Needed: Complete this section and return it with your application. It will help us better understand the financial support you’ll need to attend the HDSA National Convention

As a scholarship winner, I’ll need help with (check what you will need help with): *
Are other family members planning on attending the 2019 Convention *
If yes, do you plan on sharing a room at a hotel with one of them?
If you and/or your family members are applying for other Convention Scholarships please check all that apply. (This will not hinder or improve your chances of getting the NYA Scholarship) *


Below are a list of forms that you may be required to download fill out, scan and upload.
Financial Hardship form can be submitted in lieu of Tax Filings

** Please note that applications without supporting documents will not be accepted.